Spinal Muscular Atrophy Awareness Month
Join the movement to support research, spread knowledge, and uplift families affected by this challenging genetic condition.
Partner with Cure SMA to amplify awareness campaigns and fundraising initiatives targeting families, healthcare providers, and community advocates during August.
- Share patient stories and research breakthroughs to build emotional connection with affected families
- Promote virtual and in-person fundraising events (runs, walks, community dinners) with easy registration and donation tools
- Educate healthcare professionals and educators on SMA symptoms and support resources through webinars and downloadable guides
- Highlight corporate sponsorship opportunities for companies wanting to support genetic disease research and patient communities
Spinal Atrophy Awareness Month was founded by the Cure SMA organization, specifically as the idea of a member of the organization’s community, Shaakira Thomas. Since it was first started in 1996, this event and its organizers have been working to improve public knowledge and awareness about SMA, while pushing advancements in research for understanding and treatment of this disease.
Each year, the Cure SMA organization sponsors Spinal Muscular Atrophy Awareness Month and offers an array of opportunities for individuals, families, schools, medical professionals and community groups to get involved.
Host an SMA Awareness Event
From a small dinner party to help educate friends and family members to a large community event, Spinal Muscular Atrophy Awareness Month is an excellent time to bring people together around this particular cause! Organize a run/walk/roll event where participants can raise funds toward research and a cure or host a virtual event to create conversation and build support for the people impacted by SMA. Those who are arranging events, or who simply want to share on social media, might want to take advantage of the different resources and tools provided on the Cure SMA organization website.