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National Payton Slaymaker Day

National Payton Slaymaker Day honors the inspiring story of a young girl whose strength touched hearts across the United States. Diagnosed with diffuse intrinsic pontine glioma (D.I.P.G.), a rare, aggressive brain cancer, Payton Slaymaker faced her journey with remarkable positivity.

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Honor a young cancer survivor's legacy by driving awareness and fundraising for D.I.P.G. research through community storytelling and grassroots fundraising events.

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  • Share Payton's story of courage to inspire your community and raise D.I.P.G. awareness
  • Host a movie night fundraiser with friends to support childhood cancer research
  • Create a tribute art piece celebrating Payton's love of music, dance, and kindness
  • Donate to D.I.P.G. research organizations and amplify the call to action on social media

History

National Payton Slaymaker Day began as a heartfelt tribute to Payton Slaymaker, a brave girl from Indiana. Payton, diagnosed with diffuse intrinsic pontine glioma (D.I.P.G.) in 2019, faced her illness with remarkable courage.

After her passing in 2021, her community wanted to honor her strength and spirit. They created this day to remember her life and raise awareness about D.I.P.G., a rare, aggressive form of brain cancer affecting children​.

The idea for this day came from Payton’s family and supporters who saw how her story touched lives across the country. Her journey inspired people far beyond her hometown, leading them to join together in support of families affected by childhood cancer.

By establishing a national day, they aimed to spotlight both Payton’s legacy and the urgent need for research into this devastating disease​.

National Payton Slaymaker Day is now observed each year, drawing attention to the challenges families face when dealing with D.I.P.G.

It also highlights the importance of funding for research, as treatments remain limited for children diagnosed with this illness. The day brings communities together in both remembrance and hope​.

Payton’s story shows that this special day encourages people to contribute in meaningful ways.

From donations to simple acts of kindness, National Payton Slaymaker Day emphasizes the impact one young life can have. Each year, her legacy grows, spreading awareness and kindness in her name.


How to celebrate

Share Payton’s Story

Spread her message online or in person! Post about Payton’s story on social media or with family and friends. Raising awareness for diffuse intrinsic pontine glioma (D.I.P.G.) can help make a difference in understanding and supporting research for this disease​.

Get Crafty with a Tribute

Uniquely express yourself. Draw, paint, or make a small sculpture inspired by Payton’s favorite things, like music, dance, or friendship. Sharing these creations as a community tribute can bring people closer together in her memory.

Support D.I.P.G. Research

Donate to organizations focused on funding D.I.P.G. research. Every contribution helps move us closer to better treatment options. Whether it’s a local charity or a well-known cancer research foundation, each donation adds value​.

Hold a Movie Night Fundraiser

Host a cozy movie night with friends or neighbors. Set up a small donation jar and enjoy Payton’s favorite movies or feel-good classics. It’s a warm way to gather, relax, and remember her positive spirit while raising funds for a good cause​.

Share a Smile

Sometimes, the simplest gestures mean the most. Payton was known for her kind heart. Reach out to others, help a neighbor, or simply share a smile. Acts of kindness in her memory spread her warmth and joy even further​. National Payton Slaymaker Day Timeline1926  First clinical description of pontine gliomas in children  Neurologists in the early 20th century began publishing detailed case reports of intrinsic tumors of the pons in children, laying the groundwork for what would later be classified as diffuse intrinsic pontine glioma.   [1]1972  Introduction of cranial CT scanning in pediatric brain tumor diagnosis  The clinical rollout of computed tomography allowed physicians to noninvasively visualize brainstem masses in children for the first time, improving recognition and basic characterization of tumors that would later be labeled DIPG.   [1]1980s  MRI becomes the standard imaging tool for brainstem tumors  Magnetic resonance imaging rapidly replaces CT for evaluating pediatric brain tumors, giving clinicians clearer views of infiltrative tumors in the pons and enabling more accurate diagnosis of diffuse intrinsic pontine glioma without surgical biopsy.   [1]1993  Evidence that radiotherapy offers only temporary relief for DIPG  Clinical outcome studies in the early 1990s show that conventional external beam radiation can briefly shrink diffuse pontine tumors and improve symptoms, but nearly all children relapse within months, underscoring the need for new treatments.   [1]2012  Landmark discovery of H3K27M mutations in DIPG  Genomic analyses reveal recurrent mutations in histone H3 genes (H3.3 and H3.1) in most diffuse intrinsic pontine gliomas, defining a new molecular subtype and shifting research toward epigenetic drivers of these lethal pediatric brain tumors.   [1]2016  Childhood brain tumors surpass leukemia as the leading cause of U.S. cancer death in kids  An analysis of national mortality data finds that brain tumors have become the top cause of cancer-related death among American children, focusing attention on deadly entities like DIPG that have seen little survival improvement in decades.   [1]2018  WHO formally recognizes “diffuse midline glioma, H3 K27M‑mutant”  The World Health Organization’s revision of central nervous system tumor classifications introduces diffuse midline glioma, H3 K27M‑mutant, which includes most DIPG cases, standardizing diagnosis and supporting more targeted clinical trials.

First clinical description of pontine gliomas in children

Neurologists in the early 20th century began publishing detailed case reports of intrinsic tumors of the pons in children, laying the groundwork for what would later be classified as diffuse intrinsic pontine glioma. [1]

Introduction of cranial CT scanning in pediatric brain tumor diagnosis

The clinical rollout of computed tomography allowed physicians to noninvasively visualize brainstem masses in children for the first time, improving recognition and basic characterization of tumors that would later be labeled DIPG. [1]

MRI becomes the standard imaging tool for brainstem tumors

Magnetic resonance imaging rapidly replaces CT for evaluating pediatric brain tumors, giving clinicians clearer views of infiltrative tumors in the pons and enabling more accurate diagnosis of diffuse intrinsic pontine glioma without surgical biopsy. [1]

Evidence that radiotherapy offers only temporary relief for DIPG

Clinical outcome studies in the early 1990s show that conventional external beam radiation can briefly shrink diffuse pontine tumors and improve symptoms, but nearly all children relapse within months, underscoring the need for new treatments. [1]

Landmark discovery of H3K27M mutations in DIPG

Genomic analyses reveal recurrent mutations in histone H3 genes (H3.3 and H3.1) in most diffuse intrinsic pontine gliomas, defining a new molecular subtype and shifting research toward epigenetic drivers of these lethal pediatric brain tumors. [1]

Childhood brain tumors surpass leukemia as the leading cause of U.S. cancer death in kids

An analysis of national mortality data finds that brain tumors have become the top cause of cancer-related death among American children, focusing attention on deadly entities like DIPG that have seen little survival improvement in decades. [1]

WHO formally recognizes “diffuse midline glioma, H3 K27M‑mutant”

The World Health Organization’s revision of central nervous system tumor classifications introduces diffuse midline glioma, H3 K27M‑mutant, which includes most DIPG cases, standardizing diagnosis and supporting more targeted clinical trials.


FAQ
How did Payton’s community uniquely honor her during her illness?
Payton’s community organized creative tributes like murals and nationwide events. For instance, an artist in Winona Lake, Indiana, painted a mural in her honor. Events across all 50 states brought people together to support her family and raise awareness for D.I.P.G.
Are there notable public figures who have been affected by D.I.P.G.?
Yes, Neil Armstrong’s daughter Karen and basketball player Lauren Hill both battled D.I.P.G. Their stories amplified awareness about this rare and aggressive cancer, much like Payton’s journey.
What are some creative ways people can celebrate this day?
Some individuals create art inspired by Payton’s favorite activities, such as dance or music. Others host community movie nights featuring films Payton loved, collecting donations for D.I.P.G. research.
What are common misconceptions about D.I.P.G.?
Many believe D.I.P.G. is treatable or primarily affects adults. In truth, it affects mostly children, with no cure currently available. Fewer than 10% of children diagnosed survive beyond two years.
How can individuals contribute to D.I.P.G. advocacy beyond donating money?
Volunteering for organizations, joining awareness campaigns, and advocating for research funding are impactful. Sharing information or hosting local events also helps spread knowledge about this underfunded disease.
Are there symbols associated with National Payton Slaymaker Day?
While no official symbols exist, many supporters wear gold ribbons to represent childhood cancer awareness. Llamas are also popular in tributes, as Payton adored them.
How has social media amplified Payton’s story?
Payton’s family shared her journey on Facebook, inspiring widespread support. Her story continues to reach global audiences, motivating others to fundraise and raise awareness for D.I.P.G.
How can schools educate students about D.I.P.G. on this day?
Schools can hold essay contests, organize guest lectures, or create art projects inspired by Payton’s life. These activities foster understanding and empathy while encouraging involvement in childhood cancer initiatives.
Are there any myths about childhood cancer that National Payton Slaymaker Day helps dispel?
A common myth is that childhood cancer research receives significant funding compared to adult cancers. In reality, only a small percentage of cancer research funding focuses on pediatric cancers, leaving diseases like D.I.P.G. underfunded. This day highlights the need for equitable research investments.
What unexpected ways have people around the world celebrated National Payton Slaymaker Day?
In some places, supporters have organized llama-themed events, from petting zoos to costume contests, inspired by Payton’s love for llamas. Others have hosted virtual concerts or dance-a-thons, showcasing Payton’s passion for performing arts while raising funds for D.I.P.G. research.