National Dystonia Awareness Month
Raising understanding, shedding light on neurological challenges, fostering empathy for those navigating the complexities of dystonia.
Partner with the Dystonia Medical Research Foundation to drive awareness, donations, and volunteer recruitment through educational content and fundraising campaigns targeting patients, caregivers, and healthcare professionals.
- Share patient stories and treatment success narratives to humanize the condition
- Host virtual or in-person fundraising events and research webinars
- Create educational resources about dystonia symptoms, treatments, and support networks
- Spotlight DMRF research milestones and volunteer opportunities
The observance of National Dystonia Awareness Month was made official in 2016 when it was introduced through the US Senate and then designated by Congress that year. Since that time, the event has been celebrated annually with the purpose of increasing public awareness and providing information while advancing research opportunities.
In addition, the hope for the day is that people who are affected by dystonia will receive the support and care they so deeply need and deserve. While there is currently no cure for dystonia, there are treatment plans based on the impact on the person’s life. National Dystonia Awareness Month is celebrated with the desire to not only support people with this condition, but also to create opportunities for further medical research.
Support the Dystonia Medical Research Foundation (DMRF)
Those who want to get more involved in helping out or supporting those who are affected by dystonia might consider connecting with the DMRF. This might include volunteering, working as a researcher, or making a donation to support the charity’s efforts. National Dystonia Awareness Month is a great time to show personal support as well as increasing public knowledge or even hosting a fund-raising event to give an extra measure of support at this time of year.
Get Support for Dystonia
Individuals and families who are affected by dystonia can use Dystonia Awareness Month as an opportunity to raise awareness and find support. This might mean connecting with resources through the DMRF website, as well as perhaps joining an online support group or even starting one in the local area.