International Angelman Day
Some children light up the world in unforgettable ways. Those living with Angelman syndrome do just that—despite facing big challenges.
Drive awareness and fundraising for Angelman syndrome research and family support through community events, blue landmark illuminations, and social media storytelling on February 15.
- Share patient/family stories with #InternationalAngelmanDay to humanize rare disease research
- Organize blue-lit landmark campaigns and community fundraiser walks to generate donations and media coverage
- Distribute educational resources in schools and workplaces to combat myths and build inclusive communities
- Partner with healthcare providers and nonprofits to amplify rare disease awareness messaging
International Angelman Day started in 2013 with a simple but powerful goal—raising awareness for Angelman syndrome across the world. Two dedicated parents, each with a child affected by the condition, led the effort.
They brought together 31 organizations from different countries to create a day focused on education, support, and hope. Since then, the movement has only grown stronger.
The date, February 15, was chosen with care. The number 15 represents the 15th chromosome, which is linked to Angelman syndrome.
It also falls close to Rare Disease Day, adding more attention to the cause. This connection helps people learn not just about the condition but also about the importance of rare disease awareness in general.
Each year, more people join in. Now, over 50 organizations around the world take part. Communities light buildings in blue, hold events, and share personal stories.
Social media fills with messages of encouragement and facts about the condition. These actions spark conversations and help others understand the daily lives of those affected.
International Angelman Day is more than a calendar date. It’s a voice for families, a push for better treatments, and a celebration of every smile that shines through challenges.
Illuminate Landmarks in Blue
Encourage local authorities to light up prominent buildings or landmarks in blue on February 15. This visual display symbolizes solidarity and draws public attention to Angelman syndrome. Such initiatives have been successful in various cities worldwide.
Organize Community Fundraisers
Host events like charity walks, bake sales, or sports tournaments to raise funds for Angelman syndrome research and support services. Engaging the community in these activities promotes awareness and generates resources for affected families. For instance, the Angelman Syndrome Foundation organizes walks in multiple locations to support the cause.
Share Educational Resources
Distribute informative materials about Angelman syndrome in schools, workplaces, and community centers. Providing accurate information helps dispel myths and fosters a supportive environment for individuals with the condition. The Angelman Syndrome Foundation offers a variety of resources suitable for public dissemination.
Engage in Social Media Campaigns
Utilize platforms like Facebook, Twitter, and Instagram to share stories, facts, and updates about Angelman syndrome. Employ hashtags such as #InternationalAngelmanDay to reach a broader audience and encourage others to participate in the conversation. The official International Angelman Day website provides downloadable graphics and templates for these campaigns.
Participate in Advocacy Efforts
Join advocacy groups to promote policies supporting research funding and services for those affected by Angelman syndrome. Engaging with policymakers can lead to meaningful changes that benefit the community. Events like the Angelman Syndrome Congressional Advocacy Day provide platforms for such involvement.